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Axel Clarke COTA Fund
1 nonprofit
Axel Clarke COTA Fund Please help my nephew with anything you can. His story told by his mother below: Axel started off like any other child. He was happy, healthy, strong, and mischievous. He loved chasing his older brothers and sneaking treats to the family dog. Shortly after his first birthday he started getting sick. There was no rhyme or reason for it. He got sick back-to-back and began to struggle. When cancer was the leading prognosis, his doctors pushed for Axel to get more lab work ASAP. That push led him to the emergency room, which saved his life. It was ultimately discovered that he did not have cancer but instead was in full heart failure. After every level of testing, the cause is still unknown. He was fading fast and his best hope was being transported to Stanford Children’s Hospital. Axel held on long enough to be placed from the gurney to his hospital bed where his vitals plummeted. Emergency procedures were used to save his life that night. His parents could only watch in horror as the medical teams tried their best. His parents remember optimistically, yet naively, asking, “there’s still a chance his heart will just heal itself, right?” There was a pause and a very soft, but firm response. “Axel is critically ill. A part of his heart has died. He needs a transplant. Axel needs a new heart.” Since then, teams of doctors and machines have been used to keep him going. Axel is recovering on a Ventricular Assist Device (VAD). He is hooked up to machines that keep him alive and he cannot leave the hospital until after transplant. Axel's parents take turns being with him at the hospital and being home with his brothers. The need to be present with Axel has caused the family to be reduced to one income. For Axel and his family, this is a difficult marathon. With medical bills and expenses beginning to pile on, the family is seeking help from COTA to keep their family strong and help relieve some of the financial stress as they move through this journey together. The Children's Organ Transplant Association (COTA) helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support. COTA is the nation’s only fundraising organization solely dedicated to raising life-saving dollars in honor of transplant-needy children and young adults. 100% of each contribution made to COTA in honor of our patients helps meet transplant-related expenses. COTA’s services are free to our families, and gifts to COTA are tax deductible to the fullest extent of the law.
Wear Yellow Day Fund
2 nonprofits
Wear Yellow Day Fund
On Friday the 16th of June the Clari Cares team is asking you all to take part in one HUGE dish assist. Of course, our beautiful dish assist emblem comes in a sunny yellow colour - and on the 16th of June we’d like you all to wear yellow in honour of Wear Yellow Day - a day when the cystic fibrosis community wears yellow to raise awareness and money for what is an important cause. Some of you may know that one of our own Clarians has a son with cystic fibrosis. Nicole’s son, Arlo, was diagnosed with CF at just under 4 weeks old and you can read below to find out more about their families journey with CF. All we are asking you to do is wear something yellow on Friday, the 16th of June, and post a photo on a social network of your choice using the #wearyellowday and #yelfie. If you're feeling extra generous and wonderful then please donate to this campaign in BrightFunds. Nicole and Arlo’s story: Arlo was diagnosed with cystic fibrosis at just under 4 weeks old as it came up on one of his routine blood tests. We were immediately plunged into a routine of daily medication, physio and other treatments to keep Arlo healthy. Yet on the outside, he looked just like any other 1 month old baby boy. At the time - and now with nearly 3 years and 3 hospital stays under our belts - it has truly opened my eyes to the importance of the work that charities like the CF Trust and the CF Foundation do. Not only do we value everything that these charities do to accelerate advancements in drug therapies and continued research to support the entire CF community, but they also help carers and those affected by CF to navigate the challenges the condition brings. As a family we juggle hospital appointments, pharmacy trips and much more - including becoming experts in giving medications, administering IVs, doing physio and acting as Arlo's nurse and dietician. About Cystic Fibrosis: Cystic fibrosis (CF) is a life-limiting genetic condition affecting more than 10,800 people across the UK and over 70,000 people in the US. It impacts the lungs and digestive system, and can cause chronic infections and reduced lung function. As of today, there is no cure for cystic fibrosis - and whilst significant developments in drug therapies mean that there are many reasons to be optimistic, the condition still requires those affected by it to take daily medications and to adhere to a burdensome treatment schedule — and not everyone with CF is eligible for the drug therapies available that improve quality and length of life. The CF Trust and CF Foundation are fighting for a brighter future for people with CF, and their families, by funding cutting-edge research, driving up standards of care, and supporting people with the condition and their loved ones every step of the way.
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